SWSDE Diabetes Data

This site contains information about diabetes datasets and tools developed by the University of Exeter, NHS and NHS South West Secure Data Environment (SWSDE), including the Diabetes Core Dataset and Diabetes genomics database. It also contains information on related projects. More information on data available in the NHS SWSDE can be found on the HDR UK Health Data Research Gateway.

 

Diabetes Core Dataset

The Diabetes Core Dataset defines a standardised set of variables describing diabetes diagnosis, classification, treatment, and key outcomes, derived from routinely collected health data. It is designed to support consistent, reproducible analyses across studies by providing clear variable definitions, validated codelists, and explicit implementation rules for data extraction and derivation. This dataset was agreed by expert consensus with input from patients and the public. It was developed as part of a 2025-2026 NHS-funded driver project (press releases: 1 and 2).

The core data set can be found here: Core diabetes dataset

 

Diabetes genomics dataset

Metadata developed as part of 2026 DAFNEA project (more information here).

 

Codelists

Codelists and algorithms for defining variables in electronic health records (EHR), as well as implementation rules, are provided for the components of the core diabetes dataset and other variables.

 

Licence

This repository is released under a Creative Commons Attribution-NonCommercial 4.0 International license.

 

Contact

For further information or queries please email Katie Young: k.young3@exeter.ac.uk.